I Am Scared!!!

I must admit at this point I am scared! 

 

 

 

Today is Monday January 7th, and on Wednesday January 9th I will be going in for a total proctocolectomy.  This is a major surgery, I have been told that the surgery will last about 6 to 7 hours. 

 

I am very excited to be able to get my life back and no longer deal with Ulcerative Colitis.  I am ready to start healing and moving forward but I am scared about the surgery.  This is going to be a major life change and I know it is going to be a difficult road ahead but I just need to get through the surgery.

 

I will be keeping everyone up to date from the hospital after I am done, they are telling me that I am going to be in the hospital for 7-10 days.  I will have my computer there with me because I am going to need some connection to the outside world.  I will be providing all of my IBD companions about the surgery and the recover from beginning to end so that if someone else is going through the surgery hopefully I can answer some questions.  I know that all the information that I have read on line helped me so much, so I am hoping to return the favor to someone else. 

 

Thank you again for everyone who has supported IBD, Daddy and Me! as we have gone through this journey together.  Thank you again!

Jeremy

Seriously?!?!?!?!?!

DAMN YOU ULCERATIVE COLITIS!!!!

 

So I made it out of the hospital through Christmas!  I was able to be there in the morning and see Jude's face as he opened his presents and then the awe and wonder of Santa and his fish tank.  I am thankful for that moment.  Sadly though I didn't make it long past that.

 

We were able to go get more fish for his fish tank last night, you know Santa told me he could go get more fish, and we got them all set up and they are doing well.  However 20 days after being discharged from the hospital I am back here again.  I had been struggling off and on since being discharged but was looking forward to having my surgery consult on the 2nd.  I started bleeding again and having a lot of urgency, which led to me having two accidents.  Yes that is where we are at, I have no control of my body which sucks ass literally! 

 

They told me that they felt that it was the best idea for me to come in to the Emergency Room so I did and now am admitted to the hospital again.  We are talking in the morning about the surgery and what we are going to do.  The scary things for me is I am afraid to be discharged again because I don't know how long I am going to make it through.  I just don't know but hopefully we can come up with a plan because I cannot live like this.  Thank you for your thoughts and prayers!  I will keep everyone updated!